Wednesday, March 24, 2010

Today I go for a Cat Scan and have a chemo Doc appointment on the 30th. For the last five days I've felt like a regular person. Good energy and waking up at 5 every morning planning my day. Just like the old days! Please, keep my two buddies, Tommy T and Jimmy D in your prayers.

Tuesday, March 16, 2010

Every time I look at my "skinny" picture it makes me grateful how far I've come. Now weigh 10 pounds more that I did then.
Well, I'm four months and two weeks into having a Food Processing Unit instead of a stomach. I'm still eating 4 meals a day (should be 5) and food tastes "sorta" good. Doesn't taste bad but don't ask where I want to go out to eat because it doesn't make any difference. I'm going to eat a half a potion, because I know that I must. Kind of a drag but l'm adjusting!
Had a funny thing happen a coupla weeks ago. Somehow I lost my valve that connects my feeding tube to the sack that has my "instant meal" in it. Searched the house to no avail. Started checking phamacies and medical supply houses. Finally found a week later. Hey, I survived a week without my "nightly feedings." Me weight did not seem to flucuate but I did find I started each day with less energy and finished less. But, I got everything done each day that I wanted to do. You just do what you have to do. Still have some fluid in the upper part of my right lung. Docs keep saying, "It should just clear itself out with time." Hmmm, I sure would like a method I could do it myself or a "projected date." Get to go back for another check in a coupla weeks, to see if I've developed any "hot spots" since my "clear" reading. Please keep me in your prayers and my two buddies Tommy T and Jimmy D who I'm sharing this journey down Cancer Road with.
Love you all.

Sunday, March 7, 2010

Just celebrated my "four month anniversary" of the surgery (and the accompanying chemo and rads) and it feels great. Still learning (and relearning) things as I go. Know that I must eat at least four times a day (really, five) in order to keep up my strength but I get "busy" and don't do it. Consequently, I run out of steam and don't get done what I should do, or not get it done to the level that I really want. If I use my feeding tube at night it gives me a head start the next AM, if I don't then I have no choice but to eat correctly. So here's what I've got to start right now. Use my tube every night (for now) and then begin to create my correct habit of eating and then start backing off the tube. Sounds easy so I'll do it. The challenge of eating still is that I can only eat about 3/4 of a regular serving and then food gets to not tasting good and I feel full. Forcing myself to eat more at a setting just upsets my food processing area and then I really don't want to eat. Now, I'm not complaining, mind you, just stating the facts --- and mainly for those coming behind me with this same challenge to know that this sort of thing happens! Rest assured, I can do what I want to do, it's just how I feel afterwards that I can control --- if I eat right. Worked the polls last Tuesday from 7 to 4:30 (I did sit some when there was a lull in the action) but let me tell you, I went home and went to sleep early and missed my guy's victory party.
Can't begin to tell you all how much I appreciate your prayers. Could not have made it without you.
Lynda continues to be right by my side every step of the way and encourages me beyond belief. I can't imagine what it would be like to not have family and friends. Without them one would have no life, but that's sure not my case.
Love you all!

Thursday, February 25, 2010

Each day looks better than the last. Slowly, but ever slowly, I'm gaining stamina. No more weight, mind you, but stamina. Eating about half of normal at each "setting", just try to "set" more often each day. Doc sent me to rehab a coupla months ago and that is still going very well. My "trainer" try's to kill me every Tueday and Thursday but you know what they say, "If it doesn't kill you, it will make you well." (Well, maybe that's not it.) Still learning on the eating thing. Have it down to not eat late. Also have done well, (well, let me make that better), with a bigger pillow. I wake up about 3 with my neck hurting, change to my regular pillow and sleep like a baby for the rest of the night. Still have my feeding tube. Am cutting down on how much I intake each day and it I maintain my weight without it, then out it comes. Time will tell on that. Have had the opportunity to share the fact that a rubber plug, from a hardware store, is much more comfortable to "wear around" each day than the valve that's furnished with a feeding tube. Lynda is as happy as I've seen her in 9 months and obviously that makes me happier than I've been in that stretch of time, also. I still am in awe of the power of prayer and what God has chosen for me at this time. (Notice, I'm not assuming any more "time on earth" but am enjoying what I have each day from a different viewpoint.) He has a plan for me so I'm "keeping my eyes peeled" for that task or tasks. God is good.

Thursday, February 18, 2010

Well, it's been a day or two since I've shared my life with you all. I had the privilidge to "share" my caregiver, Lynda, with Angie, my # 2 daughter. (Now, # 2 does not mean I love her second best over either of my other daughters, it just means that she was born second.) Angie had some surgery and the proper place for a Mom to be is where she is needed.
I will have to admit, I did pretty good taking care of myself while she was gone. Don't think, however, that I didn't miss her because I did!
My "condition" is getting better by the day. (How many times have I written that?) Today was a red letter day. I weighed in at 140. It's been a slow struggle from 130 and, who knows, the next 10 pounds my come easier. I sure hope so. Sleeping at night is still "iffy." Lynda did make a great suggestion that helped. A "fatter" pillow. Keeps my head higher than my Food Processing Unit (formally know as my stomach, when all of it was there.) I try to eat early, before six, and bland stuff, but you can only do that so long. I am not waking up as many times with (what was called acid reflux) a bitter taste in my mouth, and coughing. And, that cough thing. I don't even realize I'm about to experience "bitter taste" until all of a sudden I start coughing. Strange! Never did that before.
First of February I lost a life long friend of mine, Ronnie Leatherman, who was from Levelland. His wife and children called and asked that I and one of our other buddies, Dock, put out the word that they were going to have a Remembrance Gathering at his home in Lubbock. Ronnie, by buddy who died, had called me at least every week since I found out that I had cancer. He and his family lived in Denton one year while he was doing some "education" at The University North Texas and we had reconnected. The Gathering was to take place on Feb. 6, 11 AM to 1 PM. I set my plans, to Lubbock at 9 AM on that date and back at 3 PM. (Had a prior commitment for that night.) 9 AM, Southwest and I left Love Field (beautiful clear day) but we begin to encounter clouds coming into Lubbock. Fogged in! Lubbock? You've got to be kidding! Took a coupla shots getting in but to no avail so we went to Midland/Odessa. Hung out there for a bit, were finally cleared to go to Lubbock and we dropped back in at 1:15. Just in time for me to get something to eat and wait for my flight home. Had a call from Ron's son, Gary, to tell me how well it all went and to thank Dock and I, again. (Dock, who drove, was there with a good group of our friends.) Gary also told me that he was on his way to the airport so his sister, Kelly, could fly back to Houston. Will wonders never cease? She was on the same flight I was, so we had a great visit from Lubbock to Dallas. Also, while I was at the airport, Pat, Ron's wife, called to say thanks and how much she enjoyed the Gathering. I arrived back in Dallas with my day complete (except I didn't get to see a bunch of my friends, but there will be another day for that).
My caregiver is back and I'm complete once again --- as long as I have all of you! Thanks for your prayers and concern. Lynda, I, all my girls, my grandchildren and son in laws can never begin to tell you enough. Love you all, and in closing, today, remember ---
The only thing the Lord has promised you is the breath you just took. Enjoy the next one and thank the Lord.

Thursday, February 4, 2010

Have we discussed, lately, the importance of caregivers? Indispensable is the first and only word that comes to mind. Mine is there at every turn, good or bad. Always offering a word of encouragement when things are not going quite right. Keeping up with all the instructions that all the docs give and helping set up a routine (that you can live with) and reminding (kindly) when you stray. Sometimes you can "lean on" then just a little heavily. Not taking the responsibly for you own self that you should and you can "wear them thin." You will pay, and rightfully so. Just because you are the patient doesn't mean that they have to "be patient" all the time. If you, as the patient has any gumption at all you have to reverse roles on occasion in order for your caregiver to "refresh" and feel appreciated. I love my primary caregiver and all the "auxiliary" caregivers that I have, and I couldn't make it without them. They, their prayers and the prayers of all my friends and family around the world is why I'm here today and doing well. Love you all.

Sunday, January 31, 2010

Team, if you think that "clear biopsies" mean the end of the Blog, think again. This journey ain't over! I've been advised that I will checked every three months for the next year. And, I swear it's gonna take me that long to "come to an agreement with my Food Processing Area." (Which is the new name for my "stomach.") The FPA and I continue to have a running discussion on what, how much, when and whether it wants. If I don't get it "right" my gut knots up and stays that way, generally, until I go to bed that night. I can keep on doing whatever I want or need to do but it's sure unpleasant. And, at night (if I miss the right mix) it wakes me every two hours asking for something to settle it down. It's not really all that bad except you never feel completely rested. I did sleep about 7 hours in a row last week but I didn't remember the combination that allowed me to do it. Now I'm paying more attention. Talked with a coupla of my other "Cancer Buddies" and we have agreed that the "completley rested" feel goes away when you start chemo and radiation and none of us have made it back to that plateau yet. But, we are as a team, working back there.
I did find out something about myself when I got the (currently) clear message. I just thought I was a "roll with the punches" kinda guy. Just take whatever was thrown at me and travel on. But, no! When I got that message it shook me. I wasn't prepared for it. It took me three days to process it, even tho "clear" is not forever, I could not accept it for me. Not that I didn't want it but I dang sure didn't expect it. Would you call that lack of faith? Maybe it was me dealing with that lack of faith, which I thought I had --- and found out that I didn't. Well, I've since asked the Lord to forgive me for my unbelief and am traveling on to what He has for me to do next.
God is good --- and now I realize it more than ever!